By Elyse Elconin Goldberg 61 years with CF Many years ago, my Grandmother would say these words to me, “Be Kind to Yourself,” when I would feel overwhelmed with managing my Cystic Fibrosis (CF), family responsibilities and li [...]
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Progress in research has led to new therapies that can extend and enhance the lives of those with CF, but there is still no cure.
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While life expectancy for those recently diagnosed has reached the mid-forties, the median age of death remains only thirty years.
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Cystic fibrosis (CF) is a rare genetic, chronic, progressive disease that affects over 30,000 people in the United States, and over 70,000 people worldwide.
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By G. Brown In 2019, researchers from the Milken Institute School of Public Health at George Washington University administered the “Cystic Fibrosis Health Insurance Survey.” This survey is conducted periodically to assess he [...]
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By Sandy Stevens Policymakers in the United States have increasingly been turning to international reference pricingas a mechanism to lower drug prices. It has been messaged as a silver bullet by both theAdministration and Co [...]
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By Georgia B. I am a woman pushing 50. Yet, I am thrilled to be able to say that. One thing about having Cystic Fibrosis (CF) is that we wear our age as a badge of honor. We often have our answer ready, “Hi I’m Georgia from O [...]
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By Danielle Mandella The coronavirus outbreak is scary. For all of us. It’s a virus that we don’t fully understand, yet. One thing we know for sure is that it’s capable of spreading quickly, and can be very difficult to detec [...]
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